/ Building capacity and resilience for co-design in health
/ Collaborators: Dr. Kate Sellen, Gillian Harvey, Caylee Raber, Dr. Paul Holyoke, Dr. Sarah Walker, DR. Joe Langley, Nadia Beyzaei
/ Sponsors: New Frontiers in Research Fund- Rapid Response
‘Recovery and Renewal of Participation in Healthcare Change’ project aims to build capacity and resilience in co-design in health by capturing experiences and adaptations that came about in co-design in health projects during the pandemic. The project will explore how co-design practices evolved to engage (or disengage) the most impacted communities in health service research, delivery, and improvement during and beyond a pandemic. The project will support a community of practice in co-design in health and aims to provide new guidance on techniques that can endure beyond the pandemic.
/ Background & Needs
Background: Over the last 10 years, health system and service improvement using a co-design approach was rapidly adopted as a stakeholder engaged process for inclusive and effective change. Relying heavily on close engagement with people with lived experience of health needs as well as health providers, close engagement was interrupted by the pandemic. The ‘Recovery and Renewal of Participation in Healthcare Change’ project aims to identify practices that are resilient, new practices that hold promise for enabling co-design in health, and ways in which equity and inclusion can be enhanced. Learnings from this work will then contribute to recovery and change in the health sector post-pandemic through a community of practice with global reach.
Needs: The pandemic led to rapid adaptations in co-design practices and techniques, and loss of and limitations to engagement - particularly for equity seeking groups. This loss has drawn attention to new vulnerabilities and provided the conditions for questioning co-location as a panacea for inclusion in co-designing healthcare. There are two main research questions in support of the project. The main aim relates to broader changes in co-design practice and then specifically to address issues of equity and inclusion in post-covid recovery. The project aims to answer the following questions:
1.How has co-design practice adapted and changed in response to COVID?
The project consists of three following phases: 1) planning and detailing the research plan and materials including activating the community of practice through existing networks and venues, 2) data collection analysis and initial synthesis with community of practice into candidate guidelines and principles, 3) translation of this work into resources, such as case study/demonstration project materials and detailing of techniques for training and sharing. The project will use a realist synthesis and design approaches. Whilst realist approaches will be able to give us an understanding of what works, in different contexts, for different people, design on the other hand will enable us to apply this understanding in new and better ways of working. Design practice extends the project from creating knowledge (realist review) to applying knowledge and learning through that process (research through design by demonstration projects) through the community of practice supported by this project and capacity building in new co-design methods. In addition, both realist and design approaches accept a plurality of sources of evidence and perspective, both are iterative, and both are participatory, aligning with the project's conceptual underpinning in participatory practice and constructivist epistemology.
The project is ongoing and will be updated periodically throughout the process.
OCAD University Team: Dr. Kate Sellen (Canada Research Chair in Health design, Associate professor in the faculty of Design, and director of the Health Design Studio at OCADU (OCAD University)), Maryam Mallakin (MDes, Research Associate at HDS), Chieng Luphuyong (MDes, Research Associate at HDS), Luz Paczka Giorgi (MDes candidate, Research Assistant at HDS)
University of Alberta team: Gillian Harvey (Assistant Professor in the Department of Art & Design, professional member of International Institute of Information Design (IIID) and a World Region Representative for Canada, president of the Edmonton Wayfinding Society in Edmonton, Alberta and an IIID World Region Representative), Mehrnoush Zeidabadi (research assistant)
Emily Carr university team: Caylee Raber (director of the Health Design Lab at Emily Carr University of Art and Design), Nadia Beyzaei (Manager of the Health design Lab), Lariena Kumar (Research Assistant), Shraddha Kumbhar (Research Assistant)
SE Health, SE Research Centre Canada team: DR. Paul Holyoke (Professor in the Health Science department at University of Toronto, and director of the SE Research Centre Canada)
Sheffield Hallam University team: Dr. Joe Langley (Principal Research Fellow (Design) at Lab4Living at Sheffield Hallam University)
University of Washington team: DR. Sarah Walker (Research Associate Professor at the Department of Psychiatry and Behavioral Sciences, Director of the CoLab for Community and Behavioral Health Policy, and director of the Evidence-Based Practice Institute)