Time Moving: A participatory exhibit to explore temporal perceptions around death and dying |
|
/ Authors:
Kate Sellen, Molly McGovern, Emma McGregor, Laura Halleran, Lawrence Ly
|
Proceedings of the 6th International Conference on Design4Health Amsterdam 2020
Vol. 3 July 1-3,2020 ISBN: 978-1-8381117-0-0 |
|
Abstract
Time Moving engaged in public making of timelines through storytelling utilizing participatory materials with the intention of creating an environment for the public to express and explore temporal awareness. This public experience engaged in questions of disorientation/orientation to time horizons - an integral aspect to decision making and communication at the end of life. Designers may make use of participatory experiences, like Time Moving, to build temporary assemblies (Lindstrom & amp; Stahl, 2014) that facilitate group storytelling conversations, and generate new capacity for expression on topics like death and dying. How time is experienced during moments of death and dying can change as temporal awareness shifts, priorities change, and capacity/physical constraints arise. To engage the public to explore this concept of time and temporal perception at end of life, Time Moving invited response to three prompts: (1) When you think of time, what does it look like? (2) What did time feel like during your end of life experiences? (3) How is dying time different than living time? Share a story or memory of death in shapes, yarn, etc. More specifically, these questions were asked to gain initial insights into experiences around disorientation/orientation to time horizons and perceptions of end of life. This interaction was designed with the intent of creating a public space for people to share and express their own personal end of life experiences and temporal perceptions, alongside others. Beyond these three prompts, Time Moving also offered supporting end of life materials and resources, facilitating access to local health services outside of the exhibit context. This paper will examine the use of participatory exhibit based approaches, like Time Moving, in generating new knowledge around topics like death and dying, as well as how results from exhibit based research may further contribute to understandings of quality whole person care.
Keywords: Exhibit, end of life, participatory research, person centred care Citation: Sellen, K., McGovern, M., MacGregor, E., Halleran, L., & Ly, L. (2020). Time moving: using the participatory exhibit to explore temporal perceptions around death and dying. Proceedings of the 6th International Conference on Design4Health, Amsterdam, NL, 1 July 2020. |
